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Support Groups

The ALS Association Greater New York Chapter offers monthly support groups in New York and New Jersey. Each month support groups provide an opportunity for patients, family members, caregivers and friends to come together to share stories, hear the experiences of other PALS and to get information. Scheduled are a variety of speakers to increase your knowledge about community resources and effective strategies for living with ALS.

The following support groups are open to patients, caregivers, family members and friends. For more information on these groups call or email Christine Dunn at (212) 720-3044 or dunn@als-ny.org contact the facilitator of the group you are interested in listed below.


February 2018 Support Groups


MANHATTAN, NY
Tuesday, February 20th, 2018 from 6:00 to 8:00 pm
Mt. Sinai Downtown at Union Square
Phillips Ambulatory Care Center
10 Union Square East (b/w 14th & 15th Sts.)
New York, NY 10003
Neurology Dept., 5th Floor Conf. Room
Contact: Jody Wiesel, PhD, (917) 699-9751
Topic: Respiratory Issues in ALS patients
Speaker: David Lasko, RT
Next month’s support group meets: March 20th, 2018

QUEENS, NY
Wednesday, February 21st, 2018 - 6:00 to 8:00 pm
The SilverCrest Center for Nursing and Rehabilitation
144-45 87th Avenue, 1st Floor Dining Room/Lounge
Briarwood, NY 11435
Contact: Michelle McKenzie, LMSW (718) 644-1750
Tracy Sandy-Ali, MPH, LPN, CCRC, (631) 697-6314
Topic: Open Discussion
Next month’s support group meets: March 21st, 2018

JAMES J. PETERS BRONX VA MEDICAL CENTER
Wednesday, February 14th, 2018 - 1:00 to 3:00 pm
130 West Kingsbridge Road - 1E Dayroom SCI Unit
Bronx, NY 10468
Contacts: Michelle McKenzie, LMSW (718) 644-1750
Ernest Acheampong, RN, (718)584-9000 ext. 5405
Topic: Occupational and Physical Therapy in ALS
Speakers: Melissa Ramírez, PT, DPT, NCS, ATP
Desiree M. Alvarado, OTR/LSCI Rehabilitation Occupational Therapist
Next month’s support group meets: March 14th, 2018

NASSAU COUNTY, NY
Sunday, February 4th, 2018 - 2:00 to 4:00 pm
Northwell Health at Plainview Hospital (Downstairs)
888 Old Country Road
Plainview, NY 11803
Contact: Cindy Keyser-Posner, LMSW, (631) 416-2767
Carol Bishop, RN, (631) 219-0947
Topic: Assistive Technology and Augmentative Communication in ALS
Speaker: Ben Lieman, MSW, ATP
Next month’s support group meets: March 4, 2018

SUFFOLK COUNTY, NY
Tuesday, February 6th, 2018 - 6:00 to 8:00 pm
Stony Brook Neurology Offices
181 North Belle Mead Road, Suite 5
East Setauket, NY 11733
Contacts: Theresa Imperato, RN, (516) 946-5467
Cindy Keyser-Posner, LMSW, (631) 416-2767
Topic: Assistive Technology and Augmentative Communication in ALS
Speaker: Ben Lieman, MSW, ATP
Next month’s support group meets: March 6, 2018

WESTCHESTER, NY/WHITE PLAINS
Tuesday, February 13th, 2018- 6:00 to 8:00 pm
Burke Rehabilitation Center
785 Mamaroneck Avenue, Building 7
White Plains, NY 10601
Contacts: Helen Mayer, RN, (845) 520-0952
Nancy Brenner, LCSW, (914) 406-3513
Topic: Open Discussion
Next month’s support group meets: March 13th, 2018

LOWER HUDSON VALLEY, NY
Tuesday, February 6th, 2018 - 6:00 to 8:00 pm
Ambulatory Surgery Center Bldg. C, 3rd Fl.
200 Westage Business Center
Fishkill, NY 12524
Contacts: Helen Mayer, RN, (845) 520-0952
Nancy Brenner, LCSW, (914) 406-3513
Topic: Open Discussion
Next month’s support group meets: March 6th, 2018

CENTRAL NJ
Saturday, February 17th, 2018- 1:30 to 3:30 pm
Robert Wood Johnson Fitness & Wellness Center
100 Kirkpatrick Street - Community Education Room
New Brunswick, NJ 08901, Level 2
Contacts: Debbie Schlossberg, LMSW, (732) 710-8832
Mary Ann Mertz, RN, (908) 552-5573
Topic: Tips from an Occupational Therapist
Speaker: Tejal Parikh, OT
Next month’s support group meets: March 17, 2018

NORTHERN NJ/SADDLE BROOK
Thursday, February 1st, 2018 - 7:00 to 9:00 pm
Kessler Institute for Rehabilitation
300 Market Street, Saddle Brook, NJ 07663
Contacts: Debbie Schlossberg, LMSW (732) 710-8832
Mary Ann Mertz, RN, (908) 552-5573
Topic: Communication Options in ALS
Speaker: Ben Lieman, MSW, ATP
Next month’s support group meets: March 1, 2018

TELEPHONE SUPPORT GROUPS
Patient group: Every Monday - 2:30 to 3:30 pm
Caregivers group: Every Wednesday - 4:00 to 5:00 pm
Contact: Susan Zimmerman, LCSW at 212-720-3050
Topics include: Open Discussions, Stress Reduction, Mindfulness and
Meditation Techniques

Recursos en español disponibles. Por favor llame al (212) 619-1400. Gracias.


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